Former Little Mix member Jesy Nelson has publicly shared that her twin daughters, Ocean Jade and Story Monroe Nelson-Foster, have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a rare and severe genetic condition. Nelson revealed the news through a video posted to her verified Instagram account on Sunday, clearly stating that she wanted to raise awareness and encourage early diagnosis for other families. The singer welcomed the twins prematurely in May with musician Zion Foster, and explained that concerns arose when the babies were not showing expected leg movement and were experiencing difficulties with feeding. After several months of medical appointments, specialists confirmed the diagnosis.
Nelson explained in the video that SMA Type 1 affects every muscle in the body, including those responsible for breathing and swallowing. She shared that doctors warned her the condition can be life-threatening without prompt treatment, noting that untreated cases often do not survive beyond early childhood. The assessment and diagnosis took place at Great Ormond Street Hospital in London, a leading pediatric medical center. Nelson also shared that she was informed her daughters would likely never walk or regain neck strength, meaning they will live with significant physical disabilities. Despite the emotional weight of the diagnosis, she expressed deep gratitude that her daughters were able to receive treatment in time.
Treatment, Daily Care, and Jesy Nelson’s Message to Other Families
Nelson confirmed that both girls have since received treatment, emphasizing that it was essential for their survival. She described taking on a nursing role at home, including managing breathing machines to support her daughters’ respiratory needs. She acknowledged that the past three to four months had been the most emotionally challenging period of her life, explaining that the experience completely transformed her sense of normalcy and daily routine.
Despite the challenges, Nelson shared a message of hope, saying she believes Ocean Jade and Story Monroe will continue to fight the condition with the right medical support. She stated that her decision to speak publicly was motivated by a desire to help other parents recognize symptoms early and pursue timely testing. By using her platform, Nelson aimed to highlight the importance of awareness around rare conditions like SMA and the life-saving impact of early intervention. The information shared in the article is based on Nelson’s verified Instagram video and her statements regarding her daughters’ diagnosis and treatment at Great Ormond Street Hospital.
