Solange Knowles reflects on health journey and community support

Solange Knowles revealed her struggle with chronic illnesses, including POTS, Sjogren’s syndrome, and MCAS. Diagnosed in 2018, she recently shared support for fellow artist Shaun Ross, expressing gratitude for Dysautonomia International and the “spoonie” community.

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Solange Knowles, 38, recently shared her experience with chronic health conditions in a supportive message to fellow musician Shaun Ross, 33, who was recently diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) after a long COVID infection. Responding to Ross’s open post about his journey, Knowles revealed that she, too, was diagnosed in 2018 with POTS, along with Sjogren’s syndrome and Mast Cell Activation Syndrome (MCAS).

POTS affects the autonomic nervous system, disrupting vital functions like heart rate and blood pressure, while Sjogren’s syndrome can cause chronic dryness in the eyes and mouth. MCAS, in turn, triggers excessive chemical release in the body, leading to symptoms that affect multiple organs. In her response, Knowles mentioned her deep understanding of the challenges of living with these health issues, saying she “really relate[s] to not wanting your health to be your identity.”

Knowles also credited Dysautonomia International, a non-profit that helps individuals with autonomic nervous system disorders through research, physician education, and public awareness. She expressed gratitude to the organization, calling them “an incredible resource” during her own health journey and thanked the “spoonie” community—a supportive network for those with chronic illnesses—for being there in difficult times.

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Shaun Ross responds to Knowles’ message

Ross replied to Knowles, appreciating her support and sharing that POTS has shifted his perspective as he navigates his diagnosis. Their exchange highlights the significance of mutual understanding in the chronic illness community, particularly for those like Knowles who have experienced years of uncertainty and health struggles. Knowles’s openness emphasizes the importance of solidarity and resources, a reminder that those facing similar conditions are not alone.